Cohort Details and Available Data
COHORT DETAILS
- Schedule of Events, Last updated 6 August 2020
- Cohort Profile: The Barwon Infant Study, Vuillermin et al 2015 International Journal of Epidemiology
DETAILS OF DATA AVAILABLE
Resources where you can find information about BIS and the data available include the following:
- BIS cohort profile paper
- Biological samples collection schedule
- BIS resource document
- The Lifecourse website
- List of BIS SNPs
Further information, including questionnaires and data dictionaries are available on request by contacting James Hedley: james.hedley@mcri.edu.au
HOW TO REQUEST DATA
The process for gaining access to BIS data is available below:
Before data can be provided, you will need to have your analysis concept approved by the BIS Steering Committee. To discuss your analysis concept, contact BIS at bis@barwonhealth.org.au
A template for developing a BIS concept is available here: BIS concept template
You will always need to sign a research agreement and agree to abide by BIS governance rules before being granted access to BIS data: BIS Governance Policy
The research agreement is a governance step to be developed with your BIS Steering Committee link, and Nicola Cooley: nicola.cooley@barwonhealth.org.au
Most data requests can be submitted through Pooler, which can be accessed through REDCap. Instructions for using Pooler are available below. To request access to Pooler, contact James Hedley: james.hedley@mcri.edu.au
If you need assistance or advice on how to format your analysis code using STATA, there are templates available here: STATA do-file templates
An example of how you could sturcture your analysis to make it reproducible (for your future self, as well as for other researchers) is available here: example_dofile
You can also contact james.hedley@mcri.edu.au, or you can attend one of the training courses offered by the Clinical Epidemiology and Biostatistics Unit (CEBU): CEBU training courses
FUTURE DATA COLLECTION
BIS is a long-term observational study that will examine the effects of various factors on the influences on the health, well-being and development of more than 1,000 mother-infant pairs from the Barwon region. The longer we follow participating families the more we will learn.