Cohort Details and Available Data

 

COHORT DETAILS

 

DETAILS OF DATA AVAILABLE

Resources where you can find information about BIS and the data available include the following:

 

Further information, including questionnaires and data dictionaries are available on request by contacting James Hedley: james.hedley@mcri.edu.au

 

 

HOW TO REQUEST DATA

The process for gaining access to BIS data is available below:

 

Before data can be provided, you will need to have your analysis concept approved by the BIS Steering Committee. To discuss your analysis concept, contact BIS at bis@barwonhealth.org.au

 

A template for developing a BIS concept is available here: BIS concept template

 

You will always need to sign a research agreement before being granted access to BIS data. The research agreement is a governance step to be developed with your BIS Steering Committee link, and Nicola Cooley: nicola.cooley@barwonhealth.org.au

 

Most data requests can be submitted through Pooler, which can be accessed through REDCap. Instructions for using Pooler are available below. To request access to Pooler, contact James Hedley: james.hedley@mcri.edu.au

 

If you need assistance or advice on how to format your analysis code using STATA, there are templates available here: STATA do-file templates

You can also contact james.hedley@mcri.edu.au, or you can attend one of the training courses offered by the Clinical Epidemiology and Biostatistics Unit (CEBU): CEBU training courses

 

FUTURE DATA COLLECTION

BIS is a long-term observational study that will examine the effects of various factors on the influences on the health, well-being and development of more than 1,000 mother-infant pairs from the Barwon region. The longer we follow participating families the more we will learn.